IQela lokufunda ngePomo kunye neGait
Ngaba unemibuzo? Nxibelelana no-Andrea Hunter, uMnxibelelanisi wabasebenzi be-MDS beqela, kule dilesi: ahunter@movementdisorders.org.
Goals
Injongo yokuqala kukuphuhlisa isixhobo (i-protocol yokuhlola i-core, i-CAP) eya kubonelela amaziko okuphazamiseka kwentshukumo emhlabeni jikelele ngenkqubo yokuvavanya eqhelekileyo kwizigulane ezine-Parkinson's disease (PD) kunye neemeko ezinxulumene nazo ezikhethiweyo kwi-neuromodulation ye-gait, kubandakanywa ukuvuselela kwengqondo enzulu (DBS), ukuvuselela intambo yomgogodla, kunye nezinye iinkqubo ezivelayo. Kwakhona siya kubonelela ngeengcebiso zolawulo lwangaphambili nasemva kotyando kuzo zonke ezi nkqubo kunye nokujoliswa kwangaphakathi kwi-DBS. Injongo yethu yexesha elide kukusebenzisa iCAP ephuhlisiwe kwizilingo zeklinikhi ezininzi kwizigulane ezineengxaki ze-gait.
Injongo yesibini, eqala kwi-nosology eqhelekileyo ephuhliswe yi-MDS Task Force yangaphambili kwi-Postural Abnormalities kwi-Parkinsonism, kukufumana ukuqonda okunzulu kwe-pathophysiology, ukubeka iliso, kunye nokudibanisa kweklinikhi (oko kukuthi, impembelelo yokuwa kunye nomgangatho wobomi, ukulungelelaniswa kunye nezinye iimpawu ze-axial) ye-axial postural abnormalities kwi-proparkinsonal practice kwizigulane ezine-proparkinsonism kunye ne-PDD yokulawula izigulane zabo.
Jonga imvelaphi
SiyiQela eliSebenzayo lamazwe ngamazwe (iQela eliSebenzayo le-PPN DBS) elibanzi labalingane be-35 abanamava kwi-PPN DBS (i-neurologists, i-neurosurgeons, i-neurophysiologists, i-gait specialists, i-bioengineers, kunye ne-neuropsychologists).
Ukungazinzi kwe-Postural kunye nobunzima bokuhamba (PIGD) ziimpawu ezibuthathaka kakhulu ezichaphazela phantse zonke izigulana ezine-PD ephezulu. Ezi mpawu zivela kwangoko kakhulu ngexesha lesi sifo kwi-PSP. Ezi mpawu ze-PIGD ngokubanzi aziphenduli kakuhle kunyango lwezonyango kwaye zinokuphuculwa okwethutyana yi-subthalamic nucleus kunye ne-globus pallidus internus DBS ngaphambi kokuqhubela phambili kwesifo se-axial. Uvuselelo lwePPNa lusanda kuphandwa njengenye indawo ekujoliswe kuyo ye-DBS; nangona kunjalo, iziphumo zokuqala zaxutywa. Ezi ziphumo ziphakamise inani lemiba malunga nokukhethwa kwesigulane, indawo ekujoliswe kuyo, izicwangciso ezifanelekileyo zeparameter kunye neziphumo zokulinganisa iziphumo. Sikholelwa ukuba ngoku lixesha elifanelekileyo lokugxila kwiinzuzo ezinokwenzeka kunye nemida evela kuncwadi lwangoku kunye namava ehlabathi lonke kwi-PPN DBS.
Iiprojekthi eziqhubayo
Amalungu ethu ngoku asebenza kwidrafti yokuqala yeCAP, elungisa iiseti ezahlukeneyo zemibuzo/iimpendulo kweyona miba ifanelekileyo enxulumene nePPN DBS. Uluhlu lwemibuzo lubandakanya ukukhethwa kwesigulane (iinqobo zokufakwa / ukukhutshwa), ulawulo kunye novavanyo (ixesha elifutshane kunye nexesha elide), iinkqubo zokuhlinzwa kunye nokujoliswa (ukurekhoda kwe-intra-operative kunye nokuvuselela, ukucinga okufanelekileyo, i-hardware eyaneleyo yokuhlinzwa). Indlela esetyenziswayo eyamkelweyo iquka ukuphendula ikhweshine ngokusebenzisa: a) uphononongo olucwangcisiweyo nolucokisekileyo lwezifundo ezikhoyo ezisekelwe kubungqina, b) ukwenza izigqibo kunye c) nokubonelela ngeengcebiso.
ubunkokheli
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Ikomiti eqhubayo:
UEileen Gülke
Elena Moro
UJibrin Sammani Usman
UJill Ostrem
Joachim Krauss
UJunaid Siddiqui
Michele Tinazzi
Roongroj Bhidayasiri
USmati Sambyal
Tamine Capato
UTinatin Chabrashvili
Zuzana Kosutzka