Iqela lokufunda ngeTelemedicine
Ngaba unemibuzo? Nxibelelana noNick Bauman, uMnxibelelanisi wabasebenzi be-MDS beqela, kule dilesi nbauman@movementdisorders.org
umsebenzi
Umnqophiso weli qela lophononongo kukuphanda iindlela zokuphuhlisa i-telemedicine ukuphucula ukhathalelo lwesigulane, imfundo kunye nophando lwesifo sikaParkinson kunye nezinye ukuphazamiseka kwentshukumo kwihlabathi jikelele.
Iinjongo
Iinjongo
- Okokuqala, ukubhalisa itekhnoloji esebenziseka lula ukufikelela kunye nokubonelela ngokhathalelo olungapheliyo kuso nasiphi na isigulana esinokuphazamiseka kokuhamba, naphi na emhlabeni.
- Okwesibini, ukufundisa abaqeqeshi bezempilo kwihlabathi liphela ngolawulo lwesifo sikaParkinson kunye nolunye ukuphazamiseka kwentshukumo.
- Okwesithathu, ukonyusa itekhnoloji yokwandisa ulwazi lophando kunye nokusebenza ngempumelelo kwesifo sikaParkinson kunye nolunye ukuphazamiseka kwentshukumo. Okwesine, ukusebenza njengomda we-Artificial Intelligence (AI) izicelo kwintshukumo yokuphazamiseka kwentshukumo.
- Ukunceda ukwandisa ukufikelela ekunyamekelweni kunye nokuqeqesha ababoneleli kwihlabathi jikelele usebenzisa iteknoloji, i-International Parkinson kunye ne-Movement Disorder Society iqalise i-Telemedicine Task Force kwi-2012 iguqukela kwiQela leSifundo kwi-2018. Imizamo ye-Telemedicine Task Force ibangele iiprojekthi zokulinga ekunyamekelweni kwesigulane kunye nemfundo ukubeka iziseko zokufikelela kuninzi lwabantu abaneengxaki zokuhamba.
Jonga iinjongo zeqela
- Ukufunda iindlela ezintsha nokuba nokwenzeka apho utyelelo lwe-telemedicine lunokuphunyezwa (umzekelo, i-synchronous vs. asynchronous) ukwandisa ukhathalelo olukhethekileyo lwentshukumo yentshukumo yemisebenzi eyahlukeneyo kunye nokuphucula ukufikelela kwihlabathi liphela.
- Ukufunda iindlela ezintsha apho i-telemedicine ingasetyenziselwa ukwandisa utyelelo lophando lwenyani kwizigulana ezinokuphazamiseka kwentshukumo ukufikelela kwiindawo ezingagcinwanga.
- Ukubonelela ngenkxaso kwi-International Parkinson's Disease and Movement Disorder Society ngamaphulo aphathelele kwimfundo, uphando kunye nezifundo ze-epidemiological.
- Ukuqinisekisa kunye nokufunda izixhobo zeklinikhi (izikali zokulinganisa, njl njl), ukuchaneka kokuxilonga, kunye nokuhlola ukuphazamiseka kwentshukumo ngokusebenzisa i-telemedicine.
- Ukuhlaziya amaxesha ngamaxesha iindlela ezintsha apho utyelelo lwe-telemedicine lunokuphunyezwa: izixhobo kunye nesoftware yevidiyo, ilayisenisi / ubhaliso, inkxaso yemali / imbuyekezo, ukusetwa kwegumbi leemviwo zevidiyo, njl.
Jonga iqela: |
I-MDS Telemedicine Study Group Basecamp Indawo yokusebenzela
I-MDS Telemedicine Study Group Basecamp Workspace ivuleleke kuwo onke amalungu eqela lokufunda kwaye ijonge ukusebenza njengendawo esembindini yamalungu ukunxibelelana, ukunxibelelana, kunye nokwabelana ngezimvo. Iqonga le-Basecamp livumela abasebenzisi ukuba banxibelelane ngemiyalezo ekhawulezileyo, babelane ngeefayile, kunye nokunye.
Ukukhutshwa kweDijithali kwiSifo sikaParkinson
Ikhokelwa nguRoberto Erro
Ukukhutshelwa ngaphandle kwedijithali kubhekiselele ekujongelwe phantsi kwabantu abangakwazi ukufikelela, okanye izakhono, okanye abanesimo sengqondo esibi sokusebenzisa ngokufanelekileyo, iteknoloji yedijithali. Oku kukhutshwa kunokunciphisa amandla abo okuthatha inxaxheba ngokupheleleyo kwiinkonzo ze-telemedicine, ukukhuthaza ukungalingani ekufikeleleni kwezempilo. Uphononongo olutshanje olubandakanya abantu be-490 abane-Parkinson's disease (pwPD) lubonise ukuba bafumana amanqanaba aphezulu kakhulu okukhutshwa kwedijithali xa kuthelekiswa nokulawula okunempilo, ngokukodwa ngokumalunga nokufikelela kunye nezakhono zedijithali. Ngaphezu koko, ubunzima obukhulu besifo kunye nobukho bokuphazamiseka kwengqondo kufunyenwe ukuqikelela amanqanaba aphezulu okukhutshwa kwedijithali (Canoro V et al, MDCP, 2025). Ukwakha phezu kobu bungqina, iprojekthi ekhoyo ijolise ekuhlolisiseni ukukhutshwa kwedijithali kwi-pwPD kwimbono yehlabathi, ukugqamisa ukungafani kommandla kunye nenkcubeko, kubandakanywa ukuhluka kweentlobo zezixhobo ezisetyenzisiweyo. Ngapha koko, uphando lufuna ukuphanda isithathu, ebesingahlolisiswanga ngaphambili, umqobo wokufakwa kwedijithali kwiPD, oko kukuthi isimo sengqondo malunga nobuchwepheshe bedijithali.
I-Tele-rehabilitation ye-Parkinson's Disease: Imingeni kunye neeNgcebiso kungenelelo olungelulo olwamayeza.
Ikhokelwa nguMaria Elisa Pimentel Piemonte
Eli qela lincinci liza kugxila ekuphandeni imingeni ekhethekileyo yokubonelela ngongenelelo olungelulo olwamayeza ngokubuyisela kwi-tele-rehabilitation kubantu abanesifo sikaParkinson kunye nezinye iziphazamiso zokuhamba. Umda unokubandakanya, umzekelo, iphysiotherapy, unyango lolwimi lokuthetha, unyango lomsebenzi, kunye nezinye iinkalo. Sijonge ukwabelana ngezona ndlela zilungileyo, ukuchonga izithintelo kunye nabaququzeleli, kunye nokuphuhlisa iingcebiso ezithile zokuphucula ukunakekelwa okukhuselekileyo, okusebenzayo, kunye nokunyamekela kwisigulane ngokusebenzisa i-telehealth. Lo msebenzi ubalulekile ekwandiseni ukufikelela kungenelelo olukhethekileyo kubantu abahlala kwimimandla enokufumaneka kancinci kweenkonzo zokuphazamiseka kwentshukumo, ngaloo ndlela kuncitshiswa ukungafani kwezempilo kunye nokuphucula ubulungisa bokhathalelo lwehlabathi.
Ukugcinwa koFikelelo kwiTelemedicine yeMovement Disorders ngomgaqo-nkqubo wehlabathi, ukuziqhelanisa kunye nokuqonda ngembuyekezo
Ikhokelwe nguBhavana Patel
Esi siphakamiso sicebisa ukusekwa kweqela elisebenzayo elijoliswe kwiiprojekthi zokunceda ukuzinza kwexesha elide kunye nokwandiswa kweenkonzo ze-telemedicine kubantu abaneengxaki zokuhamba. Ngaphandle kweenzuzo zeklinikhi eziqinisekisiweyo kunye nokwamkelwa ngokubanzi kwe-telehealth ngexesha lobhubhani we-COVID-19, imbuyekezo eqhubekayo kunye neyexesha elizayo ngabahlawuliyo ayiqinisekanga kwimimandla emininzi. Ngaphandle kwenkxaso eqhubekayo evela kubahlawuli, ukufikelela kwiinkonzo ze-telemedicine kusengozini.
Iingcebiso ze-Asynchronous kwiNkqubo ye-Movement Disorders (ACMD).
Ngentsebenziswano neMDS Africa Leadership
Ikhokelwa nguMark Guttman
Le nkonzo yokubonisana ihambelana noogqirha bendawo kunye nabacebisi, abangamalungu angamavolontiya e-Telemedicine Task Force, ukucebisa oogqirha abathumelayo malunga nokuxilongwa kunye nokunyangwa kwezigulane abangathanda ukuba nombono wesibini. Inkqubo yokulinga eyasungulwa ngo-2015, kwaye i-MDS iyaqhubeka nokubonelela ngenkxaso eqhubekayo kule projekthi.
- Bobabini ababhekisela kunye noogqirha baye babonisa ukwaneliseka okuphezulu ngenkqubo ukususela ekulingweni kwayo ngo-2015.
- An uvandlakanyo lokuqala yafumanisa ukuba ukubonisana nge-telemedicine kube nefuthe kuvavanyo kunye nonyango kwi-80% yamatyala.
- Kwawongwa a Amandla eMbasa yeGolide kwi 2018
| ACMD Access Portal » Kubaboneleli be-ACMD kunye nabacebisi kuphela |
ubunkokheli
Sihlalo
Anhar Hassan
Usekela-Sihlalo
URuth Schneider
Ikomiti eqhubayo
Mitra Afshari
UChrystalina Antoniades
UNicholas Bauman
UFranklin Chu Buh
UEstere Cubo Delgado
Josefa Domingos
URoberto Erro
UChristine Esper
UCristian Falup-Pecurari
Emilia Gatto
Wael Mohamed
Bhavana Patel
UMaria Elisa Piemonte
UMeredith Spindler
UCaroline Tanner
Jinyoung Young
Amaphepha apapashiweyo
ISikali esiHlengisiweyo esiqhubela phambili seSupranuclear Palsy soVavanyo lweVirtual
- Unyango
Ukwamkela utyelelo olubonakalayo lwesifo sikaParkinson ngexesha le-COVID-19 kumazwe asakhasayo
- Unyango
Ukukhawulezisa iTelemedicine yecerebral palsy ngexesha le-COVID-19 nangaphaya
- Unyango
ICoronavirus njengesixhobo se-telemedicine kwiziphazamiso ezingapheliyo ze-neurological
- Unyango
Inkqubo yokufundisa ngefowuni isifo sikaParkinson kubaboneleli bezempilo eCameroon
- Unyango
Ixesha elidlulileyo, langoku, kunye nekamva le-telemedicine yesifo sikaParkinson
- Unyango
umxholo
Isikhokelo: I-Telemedicine kwi-Movement Disorders yakho yokuziqhelanisa
Uninzi lwezigulana ezinesifo sikaParkinson kunye nolunye ukuphazamiseka kokuhamba, ngakumbi abo bangahambi ekhaya okanye abahlala emaphandleni, banokuxhamla ekufikeleleni okwandisiweyo kukhathalelo olungaphantsi nge-telemedicine.
Funda isikhokelo senyathelo nenyathelo »
Iiprojekthi ezidlulileyo
UNdwendwelo lwaseKhaya lwePalliative lwe-Atypical Parkinsonian
Ekhokelwa nguNicholas Galifianakis, MD, MPH, Alexander Pantelyat, MD
Iziphazamiso ze-Atypical Parkinsonian (okt i-MSA, i-DLB, i-CBS kunye ne-PSP) zidla ngokuba ziimeko eziqhubela phambili ngokukhawuleza apho kungekho nyango lusebenza ngokwenene oluneempawu. Oku ngelishwa kukhokelela kubunzima bemoto kodwa kunye nokukhubazeka okungeyomoto okubandakanya i-neuropsychiatric, i-psychosocial, kunye noxinzelelo lomoya oluchaphazela kakubi umgangatho wobomi (QOL). Ukhathalelo lwe-multidisciplinary oludibanisa imigaqo yokhathalelo lwe-palliative lunamandla okuphucula i-QOL ngokubeka phambili ukukhululeka kokubandezeleka. Nangona kunjalo, imithwalo yomzimba yezifo kwii-APD inika umqobo omkhulu kolu khathalelo oluxabisekileyo kodwa oluthatha ixesha elininzi. Olu phononongo lujolise ekumiseleni ukuba nokwenzeka kunye nokusebenza kakuhle kwangaphambili kunye nokwaneliseka konikezelo lwe-telemedicine olusekwe kwi-multidisciplinary palliative care kwizigulane ezine-APDs kumakhaya azo, okt utyelelo lwe-palliative virtual ekhaya.
Ingxelo yeTelemedicine Survey
Ikhokelwa ngu Anhar Hassan
I-Telemedicine isetyenziswa kakhulu ukukhathalela izigulana ezinokuphazamiseka kokuhamba, kodwa idatha malunga nokusetyenziswa kwayo kwihlabathi liphela. Kwi-2015 i-Telemedicine Task Force yenza uphando lwe-intanethi kuwo onke amalungu e-6056 e-International Parkinson kunye ne-Movement Disorder Society malunga nokusetyenziswa kwabo kwe-telemedicine. Kwakukho i-9.1% yovavanyo lwempendulo yovavanyo (abaphenduli be-549) abavela kumazwe angama-83. Uninzi (85.8%) yayingoogqirha, kwaye uninzi (71%) lwalusebenza kwizifundo/kwiyunivesithi. Isiqingatha sabaphenduli (n = 287, abavela kumazwe angama-57) basebenzise i-telemedicine yokhathalelo lweklinikhi: i-imeyile (63%), ukutyelelwa kwevidiyo (ukulandelela i-40%, entsha ye-35%), kunye nevidiyo-imfundo (35%). Utyelelo lwevidiyo lwenziwe ngokobuqu sisinye kwisihlanu (n=105) sabaphenduli, amaxesha amaninzi kwiikliniki zabangalaliswayo (54%), kumakhaya ezigulane (31%).
Ukuphazamiseka kweMovement inkqubo ye-tel-education yabafundi besikolo sezonyango abangekabinazidanga kumazwe anemivuzo ephantsi
Ikhokelwa nguEsther Cubo
Ukuze udale inkqubo yemfundo enokwenzeka, enexabiso eliphantsi, esekelwe kwiwebhu malunga neMovement Disorders kubafundi bezonyango zesidanga sokuqala kumazwe asezantsi, anengeniso ephakathi, enokufikelela kwiingcali zeMovement Disorders, i-Telemedicine Task Force yaqalisa kwaye yagqiba ikhosi entsha ngokubambisana neYunivesithi yaseDouala, iSikolo sezoNyango, iCameroon, iYunivesithi yaseBuenos yeZikolo zezoNyango zaseArgentina. Ngale nkqubo intsha, abafundi bafumene imfundo esemgangathweni malunga nokuphazamiseka kwexeshana kwiingcali ezaziwayo zehlabathi ngothotho lwewebhu. Indawo nganye ithathe inxaxheba kwiseshoni ye-7 egubungela iziseko zokuphazamiseka kwentshukumo. Nokuba ngaBafundi bezoNyango baseCameroon okanye eArgentina babonise ukuphucuka kwiZakhono zeMovement Disorders emva kokugqiba iimvavanyo zangaphambi nasemva kwekhosi.
Ukukhathalela uninzi: Inkqubo yemfundo yocingo yabasebenzi bezempilo eCameroon
Ikhokelwa nguEsther Cubo
Ukuze udale inkqubo enokwenzeka, ephantsi, i-web-based tele-education malunga ne-Movement Disorders kubasebenzi bezempilo kumazwe anengeniso ephantsi kunye nokufikelela kakubi kwiingcali ze-Movement Disorders, i-Telemedicine Task Force iqalise ikhosi entsha ngokubambisana neYunivesithi yaseDouala. Ngale nkqubo intsha, oogqirha bosapho, iingcali zemithambo-luvo, abongikazi, iingcali zesayikholojisti, kunye neengcali zephysiotherapist bafumana imfundo esemgangathweni malunga nokuphazamiseka kwethutyana kwiingcali ezaziwayo kwihlabathi ngothotho lwewebhu unyaka omnye, kanye ngenyanga. Ukwaneliseka okuphezulu kunye nokuphuculwa kolwazi kwafunyanwa emva kwesi sifundo.
Ukukhathalela uninzi: Ulawulo lweTelemedicine lwesifo sikaParkinson kubantu abangagcinwanga kwiRiphabhlikhi yabantu baseTshayina: Ulingo olungacwangciswanga
Ikhokelwa nguCarolinne Tanner kunye noPiu Chan.
Ngokuhambelana nekhosi ye-CME ebanjwe e-China, iqela labasebenzi liqhube ulingo olungenamkhethe. Zonke iingcali ze-neurologists ezithatha inxaxheba zifumene uqeqesho lweveki enye ekuxilongweni nasekulawuleni isifo sikaParkinson. Ekupheleni kweveki, izazi ze-neurologists zasekuhlaleni zazingenangqondo okanye kwiqela lokungenelela (ukubonisana kweengcali nge-telemedicine) okanye kwiqela elingenalo ukungenelela (ukhathalelo oluqhelekileyo ngaphandle kokubonisana kweengcali usebenzisa i-telemedicine). Ekupheleni kolu phononongo, unyaka omnye kamva, ukuba nokwenzeka okwaneleyo, kunye nokwaneliseka okuphezulu kwabikwa phakathi kwabasebenzisi be-telemedicine.
I-Telemedicine kwi-Movement Disorders practice: Isikhokelo seNyathelo ngenyathelo
Ikhokelwa nguMeredith Spindler, uJaime-Hatcher
Eli qela lophononongo ligqibe kwaye lingenise isifundo sokwazisa ngetelemedicine kwiklinikhi yokuphazamiseka kwentshukumo. I-tutorial ichaze amanyathelo ekufuneka ikliniki iwathathe ukuze iqhelane noogqirha bayo kunye nezigulana ezinobuchwephesha bokuphazamiseka kwentshukumo, kubandakanywa isoftware yeteknoloji kunye neenketho ze-hardware kunye neendlela ezifanelekileyo zokutyelela okokuqala kunye nokulandelayo kwe-telemedicine.
Izishwankathelo Zinikelwe kwiiNkongolo zaMazwe ngaMazwe ze-MDS
2018
1. I-Asynchronous Consulting kwi-Movement Disorders: I-East Africa Hub
M. Dekker, S. Urasa, S. Guttman, W. Howlett, M. Guttman (Moshi, United Republic of Tanzania).
2. Utyelelo lwaseKhaya lwePalliative Virtual kwi-Atypical Parkinsonian Disorders (PVH-Park Study)
M. Afshari, A. Butala, J. Guenther, A. Pantelyat, N. Galifianakis (San Francisco, CA, USA).
3. Ii-Asynchronous Telehealth Consultations for Movement Disorders in Africa
J. Guenther, M. Katz, E. Cubo, N. Galifianakis, S. Guttman, N. Okubadejo, M. Spindler, J. Aldred, M. Guttman (San Francisco, CA, USA).
2016
1. Ukukhathalela uninzi: Ulawulo lweTelemedicine lwesifo sikaParkinson (PD) kubantu abangagcinwanga kwiRiphabhlikhi yaseTshayina: Ulingo olungacwangciswanga
PB Chan, S. Liu, Z. Gu, J. An, CM Tanner (Beijing, People's Republic of China)
2. Uvavanyo lokusetyenziswa kwe-telemedicine phakathi kwamalungu e-MDS
A. Hassan, ER Dorsey, E. Cubo, CG Goetz, BR Bloem, M. Guttman, SL Heath, M. Katz, M. Spinder, CM Tanner, Z. Mari, A. Pantelyat, JA Bajwa, NB Galifianakis, EM Gatto (Rochester, MN, USA)
IQela lokufunda ngeTelemedicine eNice, eFransi, ngoSeptemba wama-2019.