Malunga noMbutho
Ngaphezulu kwe-12,000 yeengcali zokuphazamiseka kwentshukumo kwihlabathi liphela ekusebenzeni ukusasaza ulwazi kunye nokukhuthaza uphando ukuqhubela phambili intsimi.
I-International Parkinson kunye ne-Movement Disorder Society (MDS) ngumbutho oqeqeshiweyo weekliniki, izazinzulu, kunye nabanye abaqeqeshi bezempilo abanomdla kwezinye zezifo ezinzima kakhulu ukuxilonga kunye nokunyanga: ukuphazamiseka kwentshukumo, kubandakanywa nesifo sika-Parkinson, ukuphazamiseka kwe-neurodeergenerative kunye ne-neurodevelopmental disorders, ukuphazamiseka kwe-hyperkinetic movement, kunye nokungaqhelekanga kwithoni yemisipha kunye nokulawula imoto. I-MDS isebenza kuphela ngeenjongo zenzululwazi, izifundiswa kunye nezemfundo.
Ukuze sifezekise injongo yethu kunye nomsebenzi wethu, i-MDS isebenza:
Khonza njengeGlobal Voice
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I-MDS ibonelela ngeqonga leengcali ezingaphezu kwe-12,000 kwihlabathi jikelele ukuhambisa impembelelo yethu ehlangeneyo yokuphucula ukhathalelo lweMovement Disorders.
Ukukhuthaza intsebenziswano kuyo yonke imimandla yehlabathi, ukuququzelela amaqela angaphezu kwama-50 amavolontiya azinikeleyo ukuqhubela phambili ubizo loluntu.
Dibana ngaphezulu kwe-10,000 yeengcali ezahlukeneyo kwihlabathi liphela ukuze uqhagamshelane kwaye wabelane ngezimvo kwiiNgqungquthela kunye nezinye iiforamu.
Ukubonelela ngenkxaso yokuzisa imfundo yokuphazamiseka kwentshukumo kwiindawo apho ifuneka kakhulu, kwaye ifumaneka kaninzi.
UPhando oluPhambili
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I-MDS isebenza njenge-catalyst yeenzame zesayensi zokuqhubela phambili ukuqonda kwe-neurological kunye nezenzo ezinxulumene nokuphazamiseka kwentshukumo.
Lawula kwaye ujonge iijenali ezimbini ezinempembelelo ephezulu ezizinikele ekupapasheni amanqaku akumgangatho ophezulu ajongwe ngoontanga.
Phuhlisa iimvavanyo zeklinikhi ezihamba phambili kwishishini kunye nezikali ezigcina imigangatho ephezulu yophando lwezenzululwazi kulo lonke icandelo.
Phuhlisa kwaye unikeze ukufikelela kwizixhobo ezifana ne-MDSGene yokuguqulwa kwedatha, i-Prodromal PD Calculator kunye nokunye.
Ukusasaza Ulwazi
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I-MDS isebenza njengekhonkco elibalulekileyo phakathi koogqirha kunye nolwazi olukhula ngokukhawuleza malunga nendlela yokuphucula ukuxilongwa kunye nonyango lwezigulane.
Dibanisa iingcali ezikhokelayo ukuphuhlisa iikhosi zokuntywila ngaphezulu kwe-26,000 yeengcali ngonyaka.
Ukubandakanya uluntu ngeenkqubo ezahlukeneyo zokuphuhlisa intsimi kunye neengcali zayo ezisakhasayo.
Papasha izixhobo ezizibophelele kwimigangatho ephezulu yezenzululwazi, kuquka amanqaku aphononongwe ngoontanga, ithala leencwadi levidiyo eyi-1,500+, ipodcast, nokunye.
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— UStanley Fahn, uMseki we-MDS
"Ukuba ilungile kwisayensi, ngoko ke ilungile kwicandelo. Leyo yeyam, yiyo leyo yifilosofi yam, kwaye lonke uMbutho unaloo filosofi."
SingooBani
Amalungu ethu asebenza nzima ukunceda ekufezekiseni umsebenzi woMbutho. Ubunkokeli buquka imibutho eliqela kwihlabathi liphela, esebenza kunye ukuqhubela phambili unyango kunye nonyango lweengxaki zokuhamba.
Imbali kunye neLifa
I-MDS yasekwa ngo-1985 ngephulo likaNjingalwazi uStanley Fahn kunye no-C. David Marsden, ababunkokeli babo kunye nombono wabo wakhokela ukwandiswa kobuchule bezonyango kunye nophando kweli candelo. Yadibana ngo-1992 ne-International Medical Society for Motor Disturbances. Ukupapashwa kwejenali yeMovement Disorders kwaqala ngo-1986, kwaye iNkomfa yokuqala yeHlabathi yayingo-1990.
Kwi-2013, i-Movement Disorder Society yatshintsha ngokusemthethweni igama layo kwi-International Parkinson kunye ne-Movement Disorder Society ukuqaphela ukubaluleka okukhulayo kokhathalelo lwesifo sika-Parkinson kunye nophando ngaphakathi kwintsimi.
Ngokudibeneyo, amalungu ethu enze impembelelo emangalisayo kwisayensi kunye nokhathalelo.
Iimbali zomlomo
Ngenxa yokuba uMbutho uqhutywa ngamalungu ethu, iprojekthi ye-MDS Oral Histories ibamba ii-akhawunti zomntu zenkqubela phambili kwintsimi ye-Movement Disorders.
Amabhaso nembeko
I-MDS iwonga igalelo elinefuthe ebaleni kunye neengcali ezibalaseleyo ezisebenza ukuphakamisa ukuphazamiseka kwentshukumo kwihlabathi jikelele.
Imigaqo-nkqubo ye-MDS
- Ukwahluka kweMDS kunye neNgxelo yokuBandakanya
- UMgaqo-nkqubo weeNtlanganiso eziXhasiweyo neziVunyiweyo
- Indlela yokuziphatha ye-MDS (Amalungu Kuphela)
- Ingxelo ye-MDS kwiiMfazwe kunye noHlaselo
Education
Lo mmeli ulandelayo, uNjingalwazi oNdwendwelayo, iDWEP kunye neenkqubo zeNjingalwazi eziNgqongileyo zamkelwe yi-IEC ngomhla wama-20 kuSeptemba wowama-2017.
website
MDS-UPDRS